It’s been a quiet week on Harold Street. I re-started standard of care chemo last Wednesday and after my steroidal protections wore off, I retreated to bed. I felt lousy and exhausted. Sitting up for ten minutes seemed an accomplishment. My extreme response surprises me since the treatment, Gemzar and Avistan, is pretty light in the world of chemo options.
Am I so weak as I continue to stabilize from my January/February deterioration that I can no longer tolerate chemo? Or after five years of heavy treatment is my body just declaring its limits? I have chemo again this Wednesday, my birthday.
I feel unsteadily perched on a tight rope – on one side is the land of advanced terminal cancer, where I have learned to live well, on the other side is end stage cancer, which I have tried so hard to avoid.
But aren’t we all on some type on tightrope? And how much control do we truly have?
“Illness is the night side of life, a more onerous citizenship. Everyone who is born holds dual citizenship, in the kingdom of the well and in the kingdom of the sick. Although we all prefer to use the good passport, sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place.” – Susan Sontag
steady as she goes Marcy :hug:
Dear, dear Marcy — I’ll be holding you in my heart on your birthday, and onward. Celebrating your birthday with another round of chemo surely sucks, but reaching yet another one is a triumph. Take care of yourself the best way you know how and always remember that you are cherished.
Dear Marcy, Thank you for your updates……and I love your insight into this journey…….you are so good at expressing yourself. You are a Teal Sister Warrier that I admire greatly. Keeping you in my thoughts and prayers always!
it’s OK on the other side. . . but you just stay over there for a while.
spoken like an expert. xo
Marcy Westerling http://livinglydying.com/
Amazing that you are able to write your blog given how exhausted these treatments have left you! Blessings on your birthday and hopes for many more. xoxo
I had chemo on my bday this year and decided that it was cause for celebration that I was still alive and able to take the chemo. I’ll be thinking of you on your bday and celebrating that you, too, are alive and able to take chemo that will knock that cancer back. Your body may be weak right now but your fighting spirit is strong!
Hugs,
Janet
I agree. What better gift to give myself than an infusion of possibility albeit imperfect. I miss seeing you, Janet! xo
Marcy Westerling http://livinglydying.com/
Happy steroidal birthday.
You are so right – steroids are my friends!
Marcy Westerling http://livinglydying.com/
Kind and generous Marcy, I’m thankful for your words because they show me you’re fighting with everything in you. Chemo on your birthday? I will consider that a present of life for you. Big, big hugs. Carol
Great quote from Sontag for us veterans. I also enjoy steroid day. I’ve become something of a junkie. ☺️
Have a wonderful birthday.
Sending lots of love on your birthday, Marcy.
Birthday greetings, brave woman! Miss you and think about you all the time. Sending healing thoughts and love for your birthday, love!
I think I see some blue coming through the clouds – what a nice day to celebrate your birthday.
Happy early birthday, Marcy! May the chemicals be on your side!!!!
Love,
Tina
It is, indeed, a tightrope. We are your balance bar. Surround yourself (even visually, I have) in your bed with thoughts and images of all who are witnessing and accompanying. We are all just a nano-second away from slipping into the illness/death country. Thank you, as always, for your generosity (could a disability agency help you get a voice/keyboard translator?)
Happy Birthday – each one is one to celebrate YOU! And you are remarkable, your balancing act may be more difficult, but you also have more practice under your belt. And never fear – wherever you land, you will be caught by those who love you and know you best….nobody is running out of the way.
Marcy, you are always in our thoughts and I hope you are picking up on those positive vibes so you can rest and re-energize as you go through your next round of treatment.
Thanks so much for keeping us in your loop! I think you’re well balanced and manage the tight rope admirably. May your birthday be as a blessing as you experience all the deep love that envelopes you! Your willingness to light up your path is a definite gift to me! Hugs, Sylvia
Here’s to celebrating another birthday, even if it’s spent with chemo treatment. Better than the alternative of the other side of your tightrope. Thinking of you always and sending good thoughts your way.
Maybe they can give you extra steroids- a few days worth anyway….
And yes, it sucks and yes, I am so very glad you’ve made it one more time around.
Holding you in the light, Dear Heart.
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| | | Dear Marcy,BIRTHDAY !!!!!!!!!!!!!!!!!!!!!!! blessings from me and the famous 3 sock monkeys Sending love + light,Lily |
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| | | Stationery, a Yahoo Mail and Paperless Post collaboration |
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From: livingly dying To: lilyroselyn22@yahoo.com Sent: Monday, March 23, 2015 9:57 AM Subject: [New post] Enduring the Tightrope #yiv0025459098 a:hover {color:red;}#yiv0025459098 a {text-decoration:none;color:#0088cc;}#yiv0025459098 a.yiv0025459098primaryactionlink:link, #yiv0025459098 a.yiv0025459098primaryactionlink:visited {background-color:#2585B2;color:#fff;}#yiv0025459098 a.yiv0025459098primaryactionlink:hover, #yiv0025459098 a.yiv0025459098primaryactionlink:active {background-color:#11729E;color:#fff;}#yiv0025459098 WordPress.com | marcy westerling posted: “It’s been a quiet week on Harold Street. I re-started standard of care chemo last Wednesday and after my steroidal protections wore off, I retreated to bed. I felt lousy and exhausted. Sitting up for ten minutes seemed an accomplishment. My extreme respon” | |
I think having chemo on your birthday will most surely increase its potency and improve its aim. I’m so glad you were born sister Aries.
I send along with all the well and positive and warrior wishes that you have the balance of all options including not feeling like you have to push your body forward if that is what you are feeling in the moment
Thanks for the tightrope images. I’m incorporating them into my Marcy Birthday Dance along with an Infusion Toast. To Life and Light and Love and You, carol
All love surround you, dear Marcy.
Breathing with you,
Stephanie
Dear Marcy, It’s sad to hear that you are feeling so week, but great to hear that you are going to have another birthday. Take care good friend and have a piece of cake and a big hearty laugh to celebrate your life.
Love,
Judy and Linda
Marcy, Happy Birthday cabin-mate, you made it again beating all odds. Thanks for your continued dedication, no matter how weak you are, to these posts. The ever-present tightrope you/we walk only allows for a few slips and sometimes we are susceptible to elements beyond our control. Love you.
I really dig your graphics. 3 year survivor.
You continue to inspire me thru my journey with debilitating disease. Best wishes for your birthday even if there are other places you’d rather spend it. Xxx